Jadyn had Mitochondrial Complex One and Three. She was diagnosed with Acid Reflux, Epilepsy and Cortical Visual Impairment ( CVI). She had low tone and could not walk nor did she talk. But she was very expressive with her eyes and her smile. She was a trooper for all she went through and never complained. For two and a half years she had many stays in the PICU. Usually it was due to respiratory distress. She developed a lot of friends on the PICU floor that were nurses, Dr's and Respiratory Therapist.

Jadyn's favorite things to do were to sit up and play with her fan or her music switch. Her favorite colors were red and yellow. She loved to be stimulated.

Having a child with special needs can be very challenging. It seems like the odds are never on your side and its a up hill battle. But we would just look at her and see her smile and knew whatever we were doing she was happy and she was loved. As much as we wanted her to be healthy and to be able to run and talk to us we knew that was more than likely not going to happen. We found things we could do together and things she liked and stuck with those.       

It was hard to take her a lot of places due to the fear of her getting sick. We were very strict on sanitation and the wellness of the people that came in the house or around her. Her Dr's office would even give her her shots in the parking lot so she didn't have to go inside and be subjected to the germs inside.     

      Jadyn LOVED her fan, as you can see    

 Jadyn with Great Friend Marie (She made Jadyn a neckbrace and they were trying it out, don't think Jadyn loved it by the look on her face)

Mommy and Jadyn swimming 

Jadyn dressed up for Halloween
Jadyn looking at her vision board

Jadyn looking like a princess

Family photo

Happy as Ever

I hope finding this website will not let you feel alone in a situation that can feel very lonely and scary. Our purpose it not to let Jadyn's passing go by without doing something good for all she went through. We want to share her story and to let people know they are not alone. I've read other stories of families that have gone through similar struggles and yet even though they are not in the same situation, we still feel the same way when you love your child as much as we do.